2018 Galactosemia Foundation Conference Frequently Asked Questions (FAQ)


Q: What are the dates of the 2018 Galactosemia Foundation conference?

A: On-site conference registration will begin on Thursday evening, July 12, 2018.  The conference program will officially begin on Friday Morning, July 13th and conclude on Saturday evening, July 14th.


Q: Where is the 2018 Galactosemia Foundation conference going to be?

A: The 2018 Galactosemia Foundation conference will be at the Denver Marriott Tech Center, Denver, Colorado, USA.  Book your room now.


Q: How much does the Denver Marriott Tech Center cost per night?

A: The Denver Marriott Center is offering a special rate of $139.00 plus taxes per night for conference attendees.


Q: When can I get the Galactosemia Foundation group rate at the Denver Marriott Tech Center? 

A: Our group rate is available from check-in on Sunday, July 8th through checkout on Sunday, July 15th as long as rooms are available. You should book your room as soon as possible to insure that you get a room at our group rate. 


Q: How much does it cost to register for the 2018 Galactosemia Foundation conference?

A: Conference registration will depend on when you pay for your registration and what program you register for.  See ticket prices for the registration fees.


Q: What are the program types?

A: The program types are the General Program, childcare, G-Force, Generation G, and AGERs. 


Q: Which program should I register for?

A:  It depends on your age and your interests.

·         The General Program is for adults 18 years old and over.

·         The childcare program is for children 6 months to age 12. 

·         G-Force program is for teens with galactosemia and their siblings.

·         The Generation-G program is for older teens and young adults with galactosemia.

·         The AGERs program is also for adults with galactosemia and their spouses/significant others.


Q: I am an adult with galactosemia.  Which program should I attend?

A: If you would prefer to stay on-site to attend all of the general and breakout session presentations, select the General Program.   If you are interested in participating in the offsite activities, select either the Generation-G or AGERs program.  The Generation-G program is targeted toward individuals that are typically single and looking for opportunities to meet and interact with other people in a similar stage of life.  The AGERs program is targeted toward individuals with galactosemia that are living independently, married or in a committed relationship and possibly with a family of their own.


Q: Why do the special programs cost more than the general program?

A: The G-Force, Generation G, AGERs programs include off-site activities, transportation, supplies and t-shirts.  The additional fees for these programs help cover some of the additional cost of the activities.  The childcare is provided by a professional childcare company.  The higher registration fee for childcare helps to offset the cost of providing a professional childcare service during the conference.


Q: How much does the conference actually cost?

A: The registration fees only covers about 50% of the actual cost per person that Galactosemia Foundation pays to host the conference.  The Galactosemia Foundation relies on donations and fundraisers to subsidize the difference between the registration fee revenue and the actual cost of the conference.  We strive to keep the registration fees as low as possible to encourage all families to attend.  If you are financially able, please consider making a donation to cover the true costs of the conference and/or organizing fundraisers to benefit Galactosemia Foundation so that we can continue to offer a reasonably priced conference.


Q: My relative/friend is coming to Denver with me but not attending the conference.  Can they eat lunch/breaks or attend the evening social activities with me?

A: No, not unless they register and pay to attend the conference.  The Galactosemia Foundation has to pay the hotel for all of the food and beverages based on the number of attendees.


Q: Will there be galactosemia safe food available during the conference?

A: Yes!  Your conference registration fee includes a galactosemia safe lunch, and afternoon snack on both Friday and Saturday.  Also, the hotel will have a special menu of galactosemia safe items that you can order from in the hotel restaurants and from room service before, during, and after the conference.


Q: What about breakfast and dinner?

A: Breakfast and dinner are not included in the conference registration fee.  Please make your own breakfast and dinner plans for each day of the conference.  Galactosemia safe breakfast and dinner items will be available from a special menu from the hotel restaurants and room service.  There are also a variety of restaurants within walking distance of the hotel.


Q: Why is breakfast not included for the 2018 conference?

A: Breakfast was removed based on feedback from the 2014 and prior conferences and due to the cost.  Many attendees were not satisfied with continental breakfasts and other attendees requested a later start time for the conference.  In 2014 the Galactosemia Foundation paid about $34,500 for breakfast (over $60 per attendee) for continental breakfasts on Friday and Saturday. 


Q: What airport should I fly into?

A: The Denver International Airport


Q: How do I get from the Denver International Airport (DIA) to the hotel?

A: The conference hotel does not offer a shuttle service to or from the airport.  There are various options for getting from DIA to the hotel, including light rail, rental car, services such as Uber, or taxi.  See the Transportation page on the airport's website for more information.


Q: How much does it cost to park at the Denver Marriott Tech Center?

A: Self-parking at the hotel is complimentary for our group.


Q: Where can I find the conference schedule?

A: You can find the links to the schedules for the various programs on the Galactosemia Foundation website.


Q: Is there childcare available during the conference?

A: Yes, on-site childcare will be provided during the conference by a professional childcare company Childcare will be available on Friday, July 13th and Saturday, July 14th from 8:00 am until 6:00 pm.  Childcare is available for children from 0-12 years of age.  Children ages 9-12 will be in the Mighty G program, with some special on-site activities but still administered by the childcare company and Galactosemia Foundation volunteers.


Q: How much does on-site childcare cost?

A: For Early Bird registration, onsite childcare costs $209.94.  In general, onsite childcare costs about $50 more than an adult registration.  


Q: I am not from the United States.  Can I come to the conference?

A: Yes, people from all over the world are welcome to attend the Galactosemia Foundation conference.


Q: Do I have to be a member of Galactosemia Foundation to attend the conference?

A: No, Galactosemia Foundation does not have an official membership – so you do not have to be a member to attend the conference.  However, please consider signing up to receive our newsletter electronically.


Q: Is there any financial assistance available to help cover the cost of attending the Galactosemia Foundation conference?

A: Yes, there is a fundraising incentive program that provides financial assistance to those who raise and donate money to the Galactosemia Foundation.  There is also the Paul Pruszynski memorial scholarship fund to provide assistance to teens and young adults with galactosemia.  Additionally, the Galactosemia Association of Midwest America (GAMA) offers the Rylan Gelb memorial scholarship to assist families with attending the conference.  See Financial Assistance for more information.