Sources of Galactosemia Diet Guidelines
Unfortunately, the classic galactosemic diet is a controversial one. Different clinics, doctors, and parents follow different rules. Below is a list of diet guides that some parents follow. You can get these guides from your doctor/clinic/nutritionist. Please check with your own clinic for diet advice. It is important to follow your own doctor's advice, because what one clinic recommends for diet may not be what another recommends. We understand the frustration this brings and this is why we encourage all parents to gather as much information as they can, work with their clinic, so that they can make the best possible decision they can for their own child.
1) Understanding Galactosemia A Diet Guide
Lori Hartz, M.S. R.D.
Kimberly Pettis, R. D.
Sandy van Calcar, M.S. R.D.
Biochemical Genetics Program
University of Wisconsin-Madisom
Waisman Center, 1500 Highland Ave., Madison, WI
2) A Guide for the Family of the Child With Galactosemia
The Ross Metabolic Formula System, Ross Laboratories
Medical Editor: Phyllis B. Acosta, Dr. PH, RD
- Galactosemia Food Information Cooperative Web Site
- Other Diet Links
A web site created and maintained by parents of children with galactosemia for parents of children with galactosemia. This site contains information contributed by many parents who deal with the galactosemic diet on a daily basis. It is not a replacement for label reading, but it can certainly reduce the amount of time hunting for products in the grocery store aisles. Includes sections on acceptable manufactured foods, menus, recipes, manufacturer contact information, and even a section on suggestions for various holidays. Check it out, then send in YOUR contributions !!
Note - the material on the Galactosemia Food Information Cooperative Website was not created by PGC