Outdoor Bootcamp - Nashville
9:00 am09:00

Outdoor Bootcamp - Nashville

  • Vigor

Tennessee Area Members,

Sunday Aug 5, 9am, The Keegan's Kause team is holding a Bootcamp fundraiser. Former Bachelorette contestant Shawn Booth and star chef Laura Lea Goldberg are generously donating their time for this event. The Bootcamp is at Vigor Fitness, 801 5th Ave S #101 , Nashville, TN. We hope some of you can make it out. Register at http://www.events.org/galact01/ 

Jun 30

Babble Boot Camp Study

Dr Beate Peter and Dr Nancy Potter are recruiting for the Babble Boot Camp Study

11:00 am11:00

No Milk for Joseph - Ziti Lunch/Dinner Fundraiser

No Milk for Joseph

Ziti Lunch/Dinner Fundraiser


The Italian Community Center

1450 5th Avenue

Troy, NY 12180

                     October 14, 2016                     

Lunch- 11:00a.m.-2:00p.m. – dine-in, take-out,

or delivery on orders of 10 or more

Dinner- 4:00p.m.-8:00p.m. – dine-in or take-out

Click for Flyer


Sep 5

Joey's Galactosemia Label Fundraiser

Get Ready for BACK TO SCHOOL!! 

Name Bubble Labels are the cute and practical way to identify all your family's belongings and help keep them out of the "lost-and-never-found" pile. Waterproof labels and tags are made of high-performance, scuff-proof materials and are dishwasher, microwave and washer/dryer safe. Customize and preview your labels instantly with your name and choice of colorful design themes. 

Proceed’s (20%) from your Name Bubbles order will support Galactosemia research efforts. Check out Name Bubbles today at Joey's Fundraising Page:


With Love & Thanks!

The Tanella Family

Jul 16

2016 Galactosemia Foundation Conference

Join us for the 2016 conference at the Renaissance Atlanta Waverly Hotel & Convention Center

An opportunity to learn about all aspects of Galactosemia, the 2016 conference will focus on addressing real-life situations faced by those with Galactosemia. Workshops will offer practical strategies and tools that can improve the quality of life for individuals with Galactosemia and their families. In addition to the General Session for adults, professional childcare services by specially trained staff will be offered for all ages.

Through exciting, optional social activities, the conference allows an opportunity to meet other parents, dieticians, physicians, children and adults with Galactosemia, as well as a chance to sample various “safe and delicious foods.”

11:00 am11:00

Fore the Cause 2016


Event Information

Event Date: Friday, May 20, 2016

Location: Birkdale Golf Club

Address: 8511 Royal Birkdale Dr.Chesterfield, VA 23832  

Registration: 11:00 AM

Lunch: 12:00 PM

Start: 1:15 PM

Dinner & Awards: 6:00 PM  

Golf Format: Shotgun Start/Captain's Choice

Awards: First Place Team

Contests: Beat The Pro, Longest Drive, Closest To The Pin, Putting, and Hole-In-One  

Entry: Green & cart fees, contests entry, unlimited range balls, goodie bag, lunch, beverages, & awards dinner.  

Miscellaneous: Proper dress attire and soft spikes only please. Don't forget your clubs and some cash for on-site raffles and auctions. 
Early Tee Times: 7:30 AM tee times are available upon request.

May 31

Tech Soup - Storymakers 2016 Contest

Enter your story for a chance to win $7,000 for your non profit


1:00 am01:00

Rare Disease Day Events

NBA Rare Disease Day Celebration: http://www.rarediseaseday.us/events/nba/

State House Events: http://www.rarediseaseday.us/events/state-house/



Feb 29


Did you know that Feb. 29th is Rare Disease Day? 

Blue Jeans for Rare Genes #galactosemia is a fundraiser....donate money for galactosemia research & support and wear jeans on 2/29 for awareness.  


11:30 am11:30

Bowling for Breyden

Oct. 11, the Palatine family will host the second annual fundraiser at 11:30 a.m. at the Brunswick Zone XL, 1611 S. Randall Road in Algonquin, Illinois.

This year’s event, which includes pizza, shoe rental and two hours of bowling, costs $35 for adults, $20 for children and $10 for a nonbowler.

All money raised will go directly toward research and education conducted by the Galactosemia Foundation and the Galactosemia Association of Midwest America.


7:45 am07:45

Sarah's Cure Gorilla Run

Sarah's Cure Gorilla Run will be held in Decatur, Texas. All proceeds go to Galactosemia Research and Leukemia Team in Training.


Soy Boy Soiree
7:00 pm19:00

Soy Boy Soiree

First Annual Soy Boy Soiree is a comedy night at Amsterdam Brewery hosted by the incredible Erin Keaney  and featuring the hilarious work of the talented Rhiannon ArcherAli Hassan Elvira Kurt Pete ZedlacherSean Cullen and Ryan Belleville. Tickets are $80 and the night also features an outstanding silent auction (Raptors tickets, signed jerseys, TFC tickets, hotel stays, restaurant gift certificates, birthday party certificates, gift baskets and much more) 


Jun 25

Camp Candoo

June 15-25, Spokane, WA Dr. Amy Meredith and Dr. Nancy Potter, Department of Speech & Hearing Sciences at Washington State University Spokane direct Camp Candoo – a summer day camp for young children with severe speech disorders. Please see the 2015 Camp Candoo flier for more information.