Dr Beate Peter and Dr Nancy Potter are recruiting for the Babble Boot Camp Study
Get Ready for BACK TO SCHOOL!!
Name Bubble Labels are the cute and practical way to identify all your family's belongings and help keep them out of the "lost-and-never-found" pile. Waterproof labels and tags are made of high-performance, scuff-proof materials and are dishwasher, microwave and washer/dryer safe. Customize and preview your labels instantly with your name and choice of colorful design themes.
Proceed’s (20%) from your Name Bubbles order will support Galactosemia research efforts. Check out Name Bubbles today at Joey's Fundraising Page:
With Love & Thanks!
The Tanella Family
Join us for the 2016 conference at the Renaissance Atlanta Waverly Hotel & Convention Center
An opportunity to learn about all aspects of Galactosemia, the 2016 conference will focus on addressing real-life situations faced by those with Galactosemia. Workshops will offer practical strategies and tools that can improve the quality of life for individuals with Galactosemia and their families. In addition to the General Session for adults, professional childcare services by specially trained staff will be offered for all ages.
Through exciting, optional social activities, the conference allows an opportunity to meet other parents, dieticians, physicians, children and adults with Galactosemia, as well as a chance to sample various “safe and delicious foods.”
Apraxia Speech Camp
June 20-30, Spokane, WA. Dr. Amy Meredith and Dr. Nancy Potter, Department of Speech & Hearing Sciences at Washington State University Spokane direct Camp Candoo – a summer day camp for young children with severe speech disorders. Please see the website for more information: https://medicine.wsu.edu/speechandhearing/speech-and-hearing-clinic/camp-candoo/
Event Date: Friday, May 20, 2016
Location: Birkdale Golf Club
Address: 8511 Royal Birkdale Dr.Chesterfield, VA 23832
Registration: 11:00 AM
Lunch: 12:00 PM
Start: 1:15 PM
Dinner & Awards: 6:00 PM
Golf Format: Shotgun Start/Captain's Choice
Awards: First Place Team
Contests: Beat The Pro, Longest Drive, Closest To The Pin, Putting, and Hole-In-One
Entry: Green & cart fees, contests entry, unlimited range balls, goodie bag, lunch, beverages, & awards dinner.
Miscellaneous: Proper dress attire and soft spikes only please. Don't forget your clubs and some cash for on-site raffles and auctions.
Early Tee Times: 7:30 AM tee times are available upon request.
Enter your story for a chance to win $7,000 for your non profit
NBA Rare Disease Day Celebration: http://www.rarediseaseday.us/events/nba/
State House Events: http://www.rarediseaseday.us/events/state-house/
Did you know that Feb. 29th is Rare Disease Day?
Blue Jeans for Rare Genes #galactosemia is a fundraiser....donate money for galactosemia research & support and wear jeans on 2/29 for awareness.
Support Galactosemia Research with these fun t-shirts. Thanks Jessica Dennis
Oct. 11, the Palatine family will host the second annual fundraiser at 11:30 a.m. at the Brunswick Zone XL, 1611 S. Randall Road in Algonquin, Illinois.
This year’s event, which includes pizza, shoe rental and two hours of bowling, costs $35 for adults, $20 for children and $10 for a nonbowler.
All money raised will go directly toward research and education conducted by the Galactosemia Foundation and the Galactosemia Association of Midwest America.
Sarah's Cure Gorilla Run will be held in Decatur, Texas. All proceeds go to Galactosemia Research and Leukemia Team in Training.
First Annual Soy Boy Soiree is a comedy night at Amsterdam Brewery hosted by the incredible Erin Keaney and featuring the hilarious work of the talented Rhiannon Archer, Ali Hassan , Elvira Kurt , Pete Zedlacher, Sean Cullen and Ryan Belleville. Tickets are $80 and the night also features an outstanding silent auction (Raptors tickets, signed jerseys, TFC tickets, hotel stays, restaurant gift certificates, birthday party certificates, gift baskets and much more)
Do you love to run? Run for a great cause! Register to run a virtual 5K on the weekend of Sept 11-13. Run near your home and receive a medal for your achievement! All funds raised benefit the Galactosemia Foundation.
June 15-25, Spokane, WA Dr. Amy Meredith and Dr. Nancy Potter, Department of Speech & Hearing Sciences at Washington State University Spokane direct Camp Candoo – a summer day camp for young children with severe speech disorders. Please see the 2015 Camp Candoo flier for more information.