PGC Research Committee Information

Research Committee Members

  • Dan Lambert, Chair
  • Jo Beth Southard
  • Christy Johnson
  • Alison Clark
  • Denise Wilburn
  • Kristine Saylor
  • Gopi Sethu Rao
  • Brian Mannix
  • John Wassenaar

2010 Volunteers for Research Committee

Ideas for organization of committee

  1. Thank donors, Researchers, Christy
  2. Web page for PGC Research
    1. Page for each grant
      1. Summary of research project
      2. Summary reports
      3. Peer reviewed articles from research
      4. Bio of researcher
    2. Page for researchers (announce current round, rules, documents, etc.)
    3. Page for donors (List amount donated, graph of donations over time)
  3. Research articles on galactosemia research
  4. Recruitment of Peer Reviewers
  5. Evaluation of Proposals
  6. Coordination with researchers
    1. Membership List from conference
    2. Communication with researchers
    3. Reports from researchers
  7. e-mail to all PGC members doctors, dieticians, etc.
  8. Administrative (term limits, other administrative stuff)
  9. Sharing files (Google wave?)

Need to do

  1. Need announcement list from Christy
  2. Send announcement to researchers and Post on genetic websites
  3. Update files on web for new round
  4. change e-mail to mine for research@galactosemia.org
  5. List of non-parents attending conference (invite to propose and peer review)
  6. List of parents attending conference (ask them to share request for proposals with their clinic)
  7. Thank Jo Beth, Christy, Alison (ask them which area they'd like to help)
  8. Thank new members of Research Committee
  9. Set up file sharing for committee (google wave?)