The Stories of Our Kids

One of PGC's most useful purposes is to spread information about living with galactosemia. To that end, we are happy to introduce a new feature to our web site - the stories of our kids. We want families living with galactosemia to share their stories in order to pass along the 'good news' stories of our kids development as well as to provide comfort for those dealing with the complications that come our way. Too often, we focus on the potential complications that our kids might have to deal with, especially when our babies are first diagnosed with the disease. We forget that lots and lots of our kids are doing great. This monthly column intends to provide real life examples to counterbalance the 'horror stories' we imagine out of fear. We want these stories to give a sense of hope and support for all members of our community.

If you'd like to share your family's story, check out the questionnaire ... Families retain 100% editorial control of the story. No story goes on the web until the family is 100% happy with it.

Galactosemia Foundation, formally, Parents of Galactosemic Children, Inc. (PGC) is a national, non-profit, volunteer organization whose mission is to provide information, support, and networking opportunities to families affected by galactosemia.

The Stories of Our Kids