Galactosemia Foundation Grant Program

Galactosemia Foundation Research Grant round 7 is now open. The grant process now has two stages. The Stage 1 Application Form is a preliminary proposal for review by the research team. Stage 1 proposals were submitted, by Sept 1, 2018 and included a 2 page outline of the project. These are now under review by the research team. 

A subset of proposals will be invited to the Stage 2 peer review process. The decision on who is proceeding to Stage 2 will be provided to principal investigators by October 30, 2018. 

Frequently Asked Questions

What is an Eligible Project?

The Galactosemia Foundation funds a broad range of research, both scientific and medical, involving galactosemia, with the ultimate goal of improving the lives of people with galactosemia. Research funded by this grant program may include, but will not be limited to, questions involving genetics, nutrition, diet, speech, physical and occupational therapy, and premature ovarian failure. Four kinds of project designs will be considered eligible for the grants program:

A. Research Projects: 

A research project is one that asks a research question that is answered through rigorous systematic methods. These projects may include but will not be limited to investigations of measurable outcomes in galactosemia care, epidemiology of galactosemia, and novel treatments for galactosemia.

B. Clinical Projects: 

A clinical project seeks to improve Galactosemia care through the development of tools that may augment the delivery of that care. Examples of this may include but will not be limited to the development of clinical pathways and creation of measurement tools (e.g., to assess quality of life).

C. Educational Projects: 

An educational project is one that designs or implements relevant educational programs, develops educational materials, or develops innovative educational tools for patients and the community.

D. Collaborative Meetings: 

Galactosemia Foundation recognizes the need for collaboration among professionals and therefore also encourages studies that demonstrate this important activity. The grants program will accept applications to fund collaborative meetings among professionals that may lead to future research projects.

What Level of Funding can be anticipated?

Grants have historically been for $50,000 or less, depending upon the scope of the research, clinical, educational, or collaborative project.  Grant amounts will be dependent on the amount of money available in the Galactosemia Foundation Research Fund.  Research projects must be completed within the time frame selected for the research as stated on the application.

Seeking volunteer peer reviewers

The Galactosemia Foundation Research Committee is looking for qualified professinals to evaluate Galactosemia Foundation Research Proposal Grant Applications.  For more information or to indicate your interest in serving as a Peer Reviewer, follow the link below or email the Galactosemia Foundation Resarch Team.