Galactosemia Foundation Inc
Galactosemia Foundation Inc. (formerly, Parents of Galactosemic Children) is a non-profit charitable organization that advocates for people with galactosemia and their families. Founded in February 1985, Galactosemia Foundation helps provide affected families information on Galactosemia and facilitates networkings between families, clinicians and researchers.
Mission & Objectives
To educate, support and provide advocacy for those affected by Galactosemia.
To network with professionals to inspire the treatment and advanced research of Galactosemia
Kellie Wilcox – President, email@example.com
Scott Saylor – Vice-President, firstname.lastname@example.org
Brittany Cudzilo – Outreach Coordinator, email@example.com
Nicole Casale – Treasurer, firstname.lastname@example.org
Jodie Solari – Communications Lead, email@example.com
Layne Long - Board Member at Large, firstname.lastname@example.org
Cari Miller - Board Member at Large, email@example.com
About Our Board Members
Kellie Wilcox, lives in Rusk, Texas where she has worked at a small credit union for 20 years, the last 10 of those as the CEO. She has volunteered with the Kiwanis and is a lifetime member of Future Farmers of America. Kellie serves on the Rusk Chamber of Commerce board. She also serves on the board for Galactosemia Families of the Southern States and was one of the original founders. She has four children; Paden - her only Galactosemic, Tori, Blaine and Keelee. She had a Classic Galactosemia son who passed away in infancy from complications. Kellie spends most of her free time with her kids at either gym or dance practices, baseball or softball games, or various 4H contests and Boy Scouts activities.
Scott Saylor is an Area Director of Pharmacy and Retail for Walgreens Drug Stores in Central Virginia. He has been with Walgreens for 19 years. At Walgreens Scott is responsible for overseeing 5 district and 80 stores which account for $700 million in annual revenue. Scott’s duties at Walgreens include target setting, financial oversight, local marketing and local purchasing. Scott holds a BS in Management from Gannon University along with minors in Human Resource Management and Marketing. At Gannon, Scott was also a 4 year starter on the varsity football team. Scott joined the Galactosemia Foundation board after the 2012 conference.
Scott resides in Chesterfield, Virginia with his wife Kristine, daughter Brooke and son Jake. Jake was born in 2007 with classical Galactosemia. Soon after Jake was born the Saylor’s started “Fore the Cause” and have raised more than $200000 for Galactosemia Foundation. Scott and Kristine devote a lot of time to Brooke and Jake’s sports interests. Brooke is a competitive gymnast traveling across the United States to compete. Jake plays football and wrestles. Besides rooting for his kids, Scott enjoys physical fitness including running and playing a number of sports.
Brittany is the mother of three daughters, the youngest of which has Classic Galactosemia. Brittany and her husband Ben are located in Knoxville, TN and have been making connections with those around the area since their daughter Ansell was born. They are committed to reading the latest research and have a desire to understand Galactosemia to their greatest ability.
Brittany's background is in secondary education and she taught high school for 5 years. Since leaving, she has been at home raising their girls and is now working to build the GLOW fundraiser to connect Galactosemia families and raise awareness and support for the Galactosemia Foundation. Brittany will serve as the foundation's outreach coordinator and is excited to take on this new role.
Brittany and Ben traveled to Denver for their first Galactosemia Foundation conference in July 2018 and look forward to bringing their girls to Charlotte in 2020.
Nicole joined the board in 2014. She has attended the Dallas, Orlando, Atlanta, and Denver conferences and is looking forward to seeing everyone again at the next one. She and her husband Nick live in Latham, NY, and have three children, Noah, Joseph and Reagan. Joseph was born in March of 2012, and was diagnosed with classic Galactosemia at 5 days old. Like many he had a rough start, becoming septic and contracting meningitis at 9 days old which resulted in unilateral deafness. Today he is doing great and works really hard at both taekwondo and gymnastics. Currently Jojo receives speech, occupational therapy and special education services. Nicole’s other two children do not have Galactosemia, they may or may not be carriers.
Nicole is a financial coach and homeownership counselor at Troy Rehabilitation and Improvement Program. She received her Bachelor’s degree in Elementary Education from University at Plattsburgh, and her Masters of Science in Special Education from the University at Albany. Her hobbies include running, biking and swimming, as well as fundraising.
Jodie Solari lives in Williamston, Michigan with her husband Chris. They have three daughters, Francesca and twins Amelia and Annabelle. Francesca and Amelia have Classic Galactosemia. Soon after Francesca was born Jodie knew she was going to be a mom with a cause and is passionate about educating others about Galactosemia. She first became involved with the foundation after attending the Atlanta conference in 2016.
Jodie is a Communications Consultant for a utility company where she coordinates, creates and distributes internal communications to more than 10,000 employees and contractors across the state. She helps manage the company’s intranet and oversees production of the monthly electronic newsletter. Jodie is looking forward to using her knowledge and skills as the Galactosemia Foundation’s Communications Lead.
Layne Long joined the Board in 2016 after attending several conferences and serving on the Outreach Committee after the 2012 Orlando conference. She lives in Katy, TX with her husband, James, and two children Austin and Brooke. Brooke was diagnosed with Galactosemia at 5 days old in 2006 when she contracted E-coli meningitis. She is now thriving socially. Brooke is actively taking horseback riding lessons, loves to craft and cook and has been in Girl Scouts and cheerleading. Austin is active in FFA and his high school wrestling team.
Layne has been Assistant Project Manager in the oil and gas field in Houston, TX for the last 3 years. She and James volunteer on the Transportation Committee for the Houston Livestock Show and Rodeo. She is also working on her Sign Language Interrupter Certification. When she does have a free moment, Layne enjoys reading and anything involving the outdoors.
Cari Miller joined the Board in 2017. She is Aunt to two beautiful nieces; the oldest age 11 has Classic Galactosemia, and the youngest, age 9, is a carrier for Galactosemia. Cari has been attending the Galactosemia conferences with her sister-in-law Tracey, since the 2008 conference (and they have some interesting travel stories as a result) !!! Her nieces started attending in 2012 and thoroughly enjoy their time at the conference meeting other children and participating in all of the activities. Looking for a way to give back, Cari volunteered to become an active member of the Gacatosemia Foundation and was offered a Board position in late 2017.
Cari has extensive professional experience in the healthcare arena, having developed, implemented and directed healthcare projects for more than 20 years. Her activities in the healthcare arena focus on several areas, including working with physicians, practice teams, and hospital/health systems to identify ways to improve the care they are providing to their patients, including access to care, implementation of evidence-based quality care guidelines, and overall patient satisfaction and engagement with the healthcare system. She is currently working for a large health plan with a focus on developing strategic partnerships.