The Galactosemia Foundation funds a broad range of research, both scientific and medical, involving galactosemia, with the ultimate goal of improving the lives of people with galactosemia. Research funded by this grant program may include, but will not be limited to, questions involving genetics, nutrition, diet, speech, physical and occupational therapy, and premature ovarian failure. Four kinds of project designs will be considered eligible for the grants program:
A. RESEARCH PROJECTS:
A research project is one that asks a research question that is answered through rigorous systematic methods. These projects may include but will not be limited to investigations of measurable outcomes in galactosemia care, epidemiology of galactosemia, and novel treatments for galactosemia.
B. CLINICAL PROJECTS:
A clinical project seeks to improve Galactosemia care through the development of tools that may augment the delivery of that care. Examples of this may include but will not be limited to the development of clinical pathways and creation of measurement tools (e.g., to assess quality of life).
C. EDUCATIONAL PROJECTS:
An educational project is one that designs or implements relevant educational programs, develops educational materials, or develops innovative educational tools for patients and the community.
D. COLLABORATIVE MEETINGS:
Galactosemia Foundation recognizes the need for collaboration among professionals and therefore also encourages studies that demonstrate this important activity. The grants program will accept applications to fund collaborative meetings among professionals that may lead to future research projects.