Explore resources and connect with others
This galactosemia handbook presents current information for each life stage, including various symptoms that may appear. Cited recommendations are based on the international clinical guideline, peer-reviewed data, expert insights, and first-hand experience from the galactosemia community.
The Galactosemia Foundation’s informative guide gives you the tools and resources you need to be the best advocate for your child.
Learn more about a Galactosemia-friendly diet.
International clinical guidelines for the management of classical galactosemia: diagnosis, treatment, and follow-up.
Galactosemia Conversation Starters for You and Your Doctor
Galactosemia will experience it differently, but below are some common health issues that can occur at different stages of life.
The Galactosaemia Support Group brings families with galactosaemic children and adult galactosaemics into contact with each other and offers support where most needed.
The EGS was founded in 1997 as a direct result of the Fulda conference on Galactosaemia in 1993. During the Fulda meeting reprenstatives of national patient organisations met for the first time.
There are many other groups available on Facebook, other social media sites and blogs and websites that you can find by searching the internet for ‘galactosemia’.
Sites other than our official website and social media accounts are maintained by individuals and are not officially affiliated with the Galactosemia Foundation. Please note that individuals stories and experiences vary and most people posting are not qualified to provide medical advice. Please consult with qualified professionals for diet and medical advice.